Sunday, December 18, 2005

Alex the amazing little 6 year old

Andrew: “Alex, your breath smells like your feet”
without blinking an eye Alex responds: “Andrew, your face looks like your butt”

Update? We don't need no stinking updates!!!

Updates? Oh my where do I start? How far back do I go?

Andrew: Surgery went well, he actually has 3 Dr. appts this week and we will figure out how much hearing loss he’s got and how successful the surgery was.

My job: I’ve stopped the job search. We had open enrollment for health insurance so, I decided to switch plans. I couldn’t keep the Kaiser plan. I would have been paying almost $800.00 per month out of pocket, not including co-payments; we would have gone under VERY fast. But I think I’ll be able to swing things with the new insurance, it’s just scary changing doctors and plans in the middle of dealing with such serious health issues. Plus now we will have a $20 copay per visit, that can get pretty tight for our budget considering Andrew and all of the specialist he sees and Willy being seen sometimes 3 times per week. But, I’m sure it will work out. Which direction our lives are headed, I’m not sure, but I know this change is for the best.

If anything were to happen to Willy the best place for me is at the school district. Dropping off the boys and picking them up, all my time off, summers, holidays, this works best. So, I'm not sad that I didn't get a new job.

Willy: He’s been through a lot these past months. With his kidney functions decreasing, his legs swelling and open wounds all over both legs. The pain is incredible, but he’s handled it extremely well. He’d had the run-around from his Dr. at Kaiser. She would not treat the wounds on his legs and would tell him “Well, what do you want me to do about it? This is a kidney problem, go see your Nephrologists.”

We finally went to urgent care and as soon as the Dr. saw him she told him what he was dealing with, bandaged him up and referred him to the Wound care clinic. He’s been seen there twice per week, has to keep these really tight wraps on his legs 24/7. His wounds are getting better, thank God, but it’s very uncomfortable.

All in all, things are coming along. I live with the fear of my husband’s death everyday, but we’ve gotten through these very rough 8 years since the stroke and I have hope.